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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Hi,
Does anyone get night sweats even though they're ESR/CRP are very low?
OR after a steroid shot?
Just a little nervous as I am getting overheated at night.
Love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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HI Amanda,
I think you'll find lots of us get overheated at night. My husband says he can feel the heat radiating from me at times! I recently got a Silent Night "Ambience" mattress topper , it's made of stuff they use for spacesuits or something to regulate temperature and it has helped a lot. I sort of feel myself starting to get hot now but it doesn't last as long, I soon cool down again .
Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hello Lovely Amanda I myself always get night sweats after having any does of steriods,i also get red flushing of face,arms. sorry u feeling like this not pleasant at all. I also get them becasue of my ESR/CRP being so rasied at moment along with inflammed face/lupus always at nite lol.I find flannel and bowl cool water by bed helps to sooth this so can sleep. last night ahd stand at one windw not a good idea.may catch cold.! I tedn get so hot i actaully start process off Fainting,so i go to bathroom where cooler and take water seems help. hugs melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Dear Amanda and friends ... I have a constant low crp and esr rate most my esr goes to is 8 (that i know of anyway). I find i am an incubator at night. I had these night sweats before I got diagnosed (probably from the onset of RA) and it continues whilst I am on steriods. I dont know why. I have taken it from posts on the forum that its cos my RA is active and I hope the drugs sort me out. Interestingly I was extremely hot last night (and for quite a whle recently) but my husband said I was cold. I also thought when i first experience these sweats that it was the onset of menopause but blood tests confirmed I hadnt. I did speak to my rheumy about this and he said for me to take my temperature - but i dont bother as the theometer I have isnt that acurate. But now thinking of it I turned off the heating early as I got quite warm before I went to bed - so if hot tonight might take my temperature. Hope this helps. Love Mari
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Thanks for replies.
Mari, this is exactly how i am, Mark says I am not hot to touch but I am soaking. It is just so scary.
He has now opened the window and this is helping as he was thinking I was having the sweats as the heating came on but I am having them much earlier too.
It may be due to the steroid I had last Friday but they've been happening before this and with not sleeping properly anyway I feel such a mess!
Love, Amanda
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Rank: Advanced Member
Groups: Registered
Joined: 12/3/2009 Posts: 585
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Hi Amanda I have to change my night cloths some-times I have the two windows open and I also have a fan going all night this has been going on for the past 4-5 years but I have found out I am on the change I know it started when I was 45 but my mum was 36 when she started hers have you thought it could be that?? you never know why dont you ask your GP it will put your mind at rest then Mary L
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 561
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Hi Amanda, im having flush in my face only for two days now, my nose how ever is freezing, and has been for a few weeks, just rang hospital as my mum said don't leave it till next week ( hospital appointment) don't know if this is because i had steroid with each Rituximab infusion or if its some thing else , it has never happened in the fourteen years ive been ill x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 43 Location: Burgess Hill, West Sussex
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Hi Amanda,
This is something I suffer with - and have done for some time. I was advised at the end of my Chemotherapy treatment in 200 that the drugs had affected the mechanisms in the body which control temperature regulation causing Hyperthermia. If yor body heat is up and you are experiencing sweats as well, then it is advisable to see your GP as soon as possible,. Given that RA is a systemic disease, it wouldn't surprise me if this was yet another thing some of us develop because of other conditions. Please don't let it go on wihout seeing your doctor.
Bob Bob
A small group of thoughtful people could change the world. Indeed, it's the only thing that ever has.
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Hi Amanda,
Its one of the many things I am going to raise with my rheumy on my next visit Friday, so I will ask and let you know what he says (if anything). I agree that its something in our chemistry whether its drug or conditoned fuelled. I use to think everything was my age and then after diagnosed it was all down to the RA, but things are not so simple and it was bit of a negative view point.
Besides your hip Amanda how is your RA? Whats your position re the medicines, do you feel they are working for you at the moment, or why you might feel its a reaction? Try taking your temp and see if you are running a fever and i will do the same. If we have a temperature then we will need to contact the GP and if not well its something to address at the next drug review/consultation.
Take care
Mari xx
Sorry Amanda I edited this as I reflected and thought to clarify I think my issues might be that my drugs havent kicked in whereas you I gather you feel it might be a reaction. Hope we get sorted anyway. All the best
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Thanks for the replies again.
Mari, my hip is miles calmer since the large steroid. I have had two large steroids in two months so perhaps this is causing the sweats. (both joint ones)
Much love, A
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Hi again Amanda
Glad to hear those steriods sorted you out. I got a steriod shot in September into the system to help things whilst my dmards kicked in.
Take care
Mari
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Thanks Mari,
I saw what you wrote after your last post and I agree, it is terribly difficult to decipher whether these symptoms come from the illness itself, or the meds or just our own systems dealing with all this!
It is no wonder that I turn to the wine! LOL
And choc.
Love, Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Amanda
Like most others who have responded I, too, am a "hot at night" woman!! I spend the entire year sleeping with the fan on and the window open but still usually end up wet through!! It IS horrid and drives me to distraction but I have been like this for soooo long I just accept it, pain though it is! I feel very sorry for you and all the other younger members of the forum though, as I think mine may have something to do with hormones as well (I'm way past my sell by date!!)
Love Jeanxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Dear Jean,
Yes it is just horrible. I hate going to bed worrying that I'll be woken by the sweating or feeling so hot and panicky. You get into a habit and it is hard to break. Last night I was almost willing myself to remain awake incase it happened again! SO silly...as now I am exhausted..
I am praying it isn't anything serious nor the beginning of the menopause, God forbid..not yet, please!
God Bless, Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Well we could call ourselves the hot mamas  Amanda re menopause (i have read up a good bit on the fertility side of things) Dont worry as long as you get periods you can get pregnant so dont worry about that. I hate the idea of the menopause its just one more thing to contend with. -Again we (hubbie and I) are sitting around and I feel toasted and theres no heating on. Perhaps we can put it down to global warming  rather than our bods. I just had a slice of death by chocolate.........in fact i feel a bit ill.....it was so rich  What does wub mean?
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Joined: 12/3/2009 Posts: 854
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Hi Amanda, me too! The night sweats are so distressing and leads to interrupted sleep. As well as the sweats, there is the tingling feeling running down your arms and rising up in your chest. It is nasty! During the day, i have them as well. GP said that it is steroids.
Eleanor x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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I have these, for me it is steroids related for sure. Also hot joints! temperature regulation is effected by RA, it takes me a long time to warm up when cold and then a long while to cool down when hot.! how to be a velvet bulldoser
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Joined: 12/3/2009 Posts: 854
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In a nut shell Jenni! That is how it is!
Eleanor x
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Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi YA Amanda ahh now i reading through how all others are mine is very different. I do go sweaty wet hot after steriod injections. but having not had then lately. mine is very different mine is more a facial flare re lupus side things where by i feel faint no sweat no waking up wet,none that. rheumy has also told me takemy temp as any spikes of body temperature that start going high i need be seen asap. so a different issue i have,not much help. if you in any doubt do go gp even if to rule out reaction,infection.and as u say lack of sleep sure it wont help,though not a easy thing to beat. glad jabs have helped u alot.u been thouhg so much pain. hugs melly cuddly cats make my world seem so much more fun
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